Participating in HD research can be a rewarding and proactive way of contributing to the HD community. HD research studies often look for people both with and without the HD gene, so people from outside the HD community can also help.

See the list of studies below. If you are interested in participating in the studies that are actively recruiting, please be in touch with the relevant person to sign up. Alternatively, give us a call on 03 9902 0081 or email info@hdna.com.au.

The Experience of Cognitive Testing in Relation to Daily Life Cognitive Demands in Huntington's Disease

 

This study aims to investigate meaningful cognitive symptoms for the daily lives of people affected by HD and whether current cognitive measures are capturing these symptoms. We are interested in hearing from both people who have HD and from people who do not have HD but have a loved one who does. This study has been approved by the Monash University Human Research Ethics Committee (Project ID: 36930)

Results of this study will be made available in 2025 following publication.

Contact: Cali Roiboit
Email: cali.roiboit@monash.edu

Study Flyer

Brain Training in Huntington's Disease

 

Researchers at Monash University Clayton Campus are testing whether a brain training intervention improves cognitive function and strengthens brain networks in people with HD. 

Data collection has finished for this study and we thank everyone who has volunteered their time. We are in the process of analysing the results and are aiming to disseminate the results of the study over the next year. Stay tuned!

Contact: Katharine Huynh
Email: katharine.huynh@monash.edu

Study Flyer

Living Well with Huntington's Disease

 

Ji-Shen Loong is leading a multi-phase co-designed wellbeing study to support people living with HD and their families to live meaningful, purposeful lives. We would love to connect and collaborate across the community including those living with HD (broadly defined), family members, advocates and clinicians. We welcome people interested in the study across Australia to get in touch.

This study has been approved by the Monash University Human Research Ethics Committee (Project ID: 41021)

Contact: Ji-Shen Loong
Email: Ji.Loong@monash.edu

Cognitive Intervention Program for Huntington's Disease

 

We aim to develop a cognitive intervention program for people with Huntington’s disease (HD). As part of this project, we want to first learn about how thinking skills and daily activities change for people in the early stages of HD. We also want to gather opinions on a program designed to help support thinking skills. We are interested in hearing from both people with HD and their families.

Results of this study will be made available in 2026 following publication. This study has been approved by the Monash University Human Research Ethics Committee (Project ID: 43461).

Contact: Amy Huynh
Email: amy.huynh@monash.edu

Study Flyer

The Clinical Utility of the Trail-Making Test in Huntington’s Disease

 

Clinicians and researchers often use cognitive tests to monitor and understand changes in thinking skills and memory in people with HD. This study aims to expand our understanding of some commonly used cognitive tests in HD, including the Trail Making Test, and how to use them effectively to monitor HD progression.

This study is not recruiting participants. Results of the research project will be made available through published research articles.

Contact: Seba Jacob
Email: Seba.Jacob1@monash.edu