Participating in HD research can be a rewarding and proactive way of contributing to the HD community. HD research studies often look for people both with and without the HD gene, so people from outside the HD community can also help.

See the list of studies below. If you are interested in participating, please be in touch with the relevant person to sign up. Alternatively, give us a call on 03 9902 0081.

The Experience of Cognitive Testing in Relation to Daily Life Cognitive Demands in HD


This study is taking place at Monash University Clayton Campus. The aim of this study is to investigate meaningful cognitive symptoms for the daily lives of people affected by HD and whether current cognitive measures are capturing these symptoms. 

Contact: Cali Roiboit

Study Flyer

Brain Training in HD


Researchers at Monash University Clayton Campus are testing whether a brain training intervention improves cognitive function and strengthens brain networks in people with HD. 

Contact: Katharine Huynh

Study Flyer

Living Well with Huntington's Disease


Ji-Shen Loong is leading a multi-phase co-designed wellbeing study to support people living with HD and their families to live meaningful, purposeful lives. We would love to connect and collaborate across the community including those living with HD (broadly defined), family members, advocates and clinicians. We welcome people interested in the study across Australia to get in touch.

This study has been approved by the Monash University Human Research Ethics Committee (Project ID: 41021)

Contact: Ji-Shen Loong