The Huntington’s Disease Network of Australia (HDNA) is a project conceived of by Professor Julie Stout of Monash University. The grant-funded project began in 2020. The grant is from the National Health and Medical Research Council (NHMRC) of Australia. The NHMRC provides funding to high performing researchers for important research. New research findings improve the knowledge of medical conditions affecting people in Australia. In turn, this leads to the development of better treatments for these conditions.
Why now?
- It is the most optimistic time period in the history of Huntington’s disease (HD)
- Worldwide, clinical trials are testing promising new treatments
- Potential treatments look safe and early signs suggest they may be effective
- In Australia, we must prepare for approved new treatments to reach patients
Why join the Map-HD Registry?
A registry of all people in Australia affected by HD will:
- Map the families affected by HD across Australia
- Facilitate planning to match the needs of HD families with available resources
- Expand networks of care and services to enable future treatments to reach all who need them