Mapping HD helps us to understand who is affected and give them better access to clinical care and support services
Prevalence studies help to improve the understanding and treatment of Huntington's disease
A national approach to deliver the best model of HD care within Australia
Ensuring Australia is ready for new treatments as they become available
Preparing Australia for the advent of treatments that will make a difference in HD
Huntington's disease affects families across every generation
The best quality of life for every person in Australia affected by HD
Get to know the team behind the Map-HD Registry
Helpful links for families affected by HD
Helpful links for HD clinicians
Helpful links for researchers
Watch this space
Find a Specialist Clinic
State-wide associations to provide support, resources and advocacy for people affected by HD
Explore the links below to keep up to date with each organisation and its goals
Published: December 21, 2021
Read it here!
December 21, 2021
April 27, 2021
An open letter to the Australian Huntington’s community