Many families wish to undergo genetic testing. Testing helps to understand whether they have the expanded CAG repeat on the huntingtin gene. This is the gene responsible for Huntington’s disease. Genetic testing is available in all states and territories of Australia. In many states, this includes regional centres.

In Australia, genetic testing is available to people 18 years or older.

The contact list provided below is a resource. Use it to gain information or access the services closest to you.

New South Wales

 

Royal Prince Alfred Hospital

Department of Medical Genomics/Clinical Genetics

Missenden Road, Camperdown, NSW 2050

Ph: (02) 9515 5080

Fax: (02) 9515 5490

Email: SLHD-RPAGeneClinic@health.nsw.gov.au

Click here to access the website.

 

St Vincent’s Hospital

St Vincent’s Clinical Genomics

97-105 Boundary Street

Darlinghurst, NSW 2010

Ph: (02) 8382 4899

Fax: (02) 8382 4895

Email: svhs.genomics@svha.org.au

Click here to access the website.

St George Hospital

Clinical Genetics Service

Kogarah, NSW 2217

Ph: (02) 9113 3635

Fax: (02) 9113 3694

Email: SESLHD-StGeorgeGenetics@health.nsw.gov.au

Department of Clinical Genetics

Liverpool Hospital

Locked Bag 7103, Liverpool, BC NSW 1871

Ph: (02) 8738 4665

Fax: (02) 8738 4650

Email: SWSLHD-ClinicalGenetics@health.nsw.gov.au

Click here to access the website.

Hunter Genetics

PO Box 84, Waratah, NSW 2298

Ph: (02) 4985 3100

Fax (general): (02) 4985 3105

Fax (referrals): (02) 4923 6589

Email: HNELHD-Genetics@health.nsw.gov.au

Click here the access the website.

Nepean Hospital

Department of Clinical Genetics

PO Box 63, Penrith, NSW 2750

Ph: (02) 4734 3362

Fax: (02) 4734 4472

Email: NBMLHD-Genetics@health.nsw.gov.au

The Sydney Children’s Hospital

Centre for Clinical Genetics

Level 9, Bright Alliance Building

High St, Randwick, NSW 2031

Ph: (02) 9382 5608 / (02) 9382 5609

Fax: (02) 9382 5683

Email: schn-sch-clinicalgenetics@health.nsw.gov.au

 

Royal North Shore Hospital

Department of Clinical Genetics, Level 3E, Acute Service Building

St Leonards, NSW 2065

Ph: (02) 9463 1727

Fax: (02) 9463 1057

Email: nslhd-clinicalgenetics@health.nsw.gov.au

Click here to access the website.

The Children’s Hospital at Westmead

Department of Clinical Genetics

Locked Bag 4001

Westmead, NSW 2145

Ph: (02) 9845 3273

Fax: (02) 9845 3204

Email: SCHN-CHW-ClinicalGenetics@health.nsw.gov.au

Click here to access the website.

Westmead Hospital

Department of Genetic Medicine (C3b)

PO Box 533, Wentworthville, NSW 2145

Ph: (02) 8890 9780

Fax: (02) 8890 9789

Email: WSLHD-Geneticmedicine-Westmead@health.nsw.gov.au

Australian Capital Territory

 

Canberra Health Services

ACT Genetics

PO Box 11, Woden, ACT 2606

Ph: (02) 5124 7630

Fax: (02) 5124 3021

Email: genetics@act.gov.au

Northern Territory

 

Northern Territory Clinical Genetics Service

Royal Darwin Hospital

PO Box 41326

Casuarina NT 0811

Ph: (08) 8944 8731 or via Melbourne (03) 9936 6315

Fax: (03) 8341 6390

Email: ntgenetics@vcgs.org.au

Queensland

 

Genetic Health Queensland (state-wide service)

Royal Brisbane & Women’s Hospital Campus

Level 6, Block 7

Herston, QLD 4029

Ph: (07) 3646 1686

Email: GHQ@health.qld.gov.au

Fax: Referrals by doctor via the Central Patient Intake Unit (CPIU)

Click here the access the website.

 

For private services:

 

Genes Australia

Ph: (07) 3088 6983

Fax: (07) 3014 0186

Email: admin@genesaustralia.com.au

Referrals can be sent via Medical Objects by doctors, by fax or by email and patients can send referrals through too

Click here to access the website.

 

Brisbane Genetics

Specialist Centre

Suite 107, Level 7

83 Nicholson Street

Greenslopes QLD 4120

Ph: (07) 3217 8244

fax: (07) 3217 8255

Email: email@brisbanegenetics.com.au

Click here to access the website.

 

Professor David Coman

L2 Leichhardt Court

55 Little Edward Street

Spring Hill QLD 4000

Ph: (07) 3832 9876

Fax: (07) 3319 6617

Email: reception@drdavidcoman.com.au

Click here to access the website.

Victoria

 

Victorian Clinical Genetics Services (VCGS)

Royal Children’s Hospital

Murdoch Children’s Research Institute

Flemington Road

Parkville, VIC 3052

Ph: (03) 8341 6201

Fax: (03) 8341 6479

Email: vcgs@vcgs.org.au

Click here to access the website.

 

Genomic Medicine Department, Neuro-genetics Clinic

The Royal Melbourne Hospital

Level 2, 300 Grattan Street

Parkville, VIC 3052

Ph: (03) 9342 7151

Fax: (03) 9342 4267

Email: GeneticsNeuroClinic@mh.org.au

Click here to access the website.

Monash Genetics

General Genetics

Special Medicine Centre

Monash Medical Centre

246 Clayton Road

Clayton VIC 3168

Ph: (03) 9594 2026

Email: monashgenetics@monashhealth.org

Fax (referrals): (03) 9594 2273

Email: outpatient_equiries@monashhealth.org

Face-to-face (Clayton) and Telehealth Services available.

Click here to access the website.

 

Genetics in the North East

Austin Hospital

145 Studley Road

Heidelberg VIC 3084

Ph: (03) 9496 3027

Fax: (03) 9496 4385

Email: genetics@austin.org.au

 

South Australia

 

Referrals for predictive testing or other services may be made to:

Senior Social Worker

South Australian Huntington’s Disease Service

Repat Health Precinct

Daw Park SA 5041

Southern Area Local Health Network

Ph: (08) 7117 5097

Fax: (08) 7117 5081

Email: Health.FMCSocialWork@sa.gov.au

 

Referrals for predictive testing may also be made to:

Adult Genetics Unit

Royal Adelaide Hospital

Level 8 (8F401.52; MDP 63)

Port Road

Adelaide SA 5000

Ph: (08) 7074 2697

Fax: (08) 8429 6112

Email: adultgenetics@sa.gov.au

Tasmania

 

Tasmanian Clinical Genetics Service

C/- Royal Hobart Hospital

GPO Box 1061,

Hobart, TAS 7001

Ph: (03) 6166 8296

Fax: (03) 6173 0328

Email: tcgs@ths.tas.gov.au

Click here to access the website.

Face-to-face clinics (Hobart, Launceston and Latrobe) or Telehealth (video) clinics, are available depending on clinician-availability.

Western Australia

 

Genetic Services of Western Australia

King Edward Memorial Hospital

374 Bagot Road Subiaco, WA 6008

Ph: (08) 6458 1525

Fax: (08) 6458 1678

Email: gswa@health.wa.gov.au

Click here to access the website.