News and Events
Stay up to date with news and events
Face-to-face: Huntington’s disease families are heard by the FDA
TRIGGER WARNING: This article contains a frank discussion around the challenges and realities of living with Huntington’s disease, as well as caring for those affected…
The dust has settled: Sage’s dalzanemdor won’t advance for cognitive impairment
The Huntington’s disease (HD) community received the news on November 20, 2024 that Sage Therapeutics would be halting the development of their drug dalzanemdor (previously…
We are not alone, and are seeing more RED
A recent study published in Nature Medicine, looked at how common certain genetic diseases are within the population. The diseases they looked at are referred…
Huntington Study Group (HSG) Conference 2024 – Day 3
We’re back for the 3rd and final day of the Huntington Study Group (HSG) Conference. You can also read updates from day1 and day 2….
Huntington Study Group (HSG) Conference 2024 – Day 1
The Huntington Study Group (HSG) is a clinical research network focused on accelerating treatments for Huntington’s disease (HD). This year, the annual conference is being…