Mapping HD helps us to understand who is affected and give them better access to clinical care and support services
Prevalence studies help to improve the understanding and treatment of Huntington's disease
A national approach to deliver the best model of HD care within Australia
Ensuring Australia is ready for new treatments as they become available
Preparing Australia for the advent of treatments that will make a difference in HD
Huntington's disease affects families across every generation
The best quality of life for every person in Australia affected by HD
Get to know the team behind the Map-HD Registry
Helpful links for families affected by HD
Helpful links for HD clinicians
Helpful links for researchers
Watch this space
Find a Specialist Clinic
State-wide associations to provide support, resources and advocacy for people affected by HD
Explore the links below to keep up to date with each organisation and its goals
Published: October 1, 2021
Wave Life Sciences Announces Initiation of Dosing in Phase 1b_2a SELECT-HD Clinical Trial of WVE-003 in Huntington’s Disease
June 26, 2024
Great news on the positive results! Read all the details below. Community Letter Press Release
May 21, 2024
Highlights from the 2024 CHDI HD Therapeutics Conference || Palm Springs 26 – 29 February 2024 Including Clinical Trial updates from PTC Therapeutics, Wave Life…
November 5, 2022
In August 2022, uniQure announced a pause in new recruitment for their trial of AMT-130, an HD gene therapy delivered via brain surgery. The decision…
October 1, 2021